Friday, 19 February 2016

Rare Disease Day Chat - #rddchat


 
 
 
 
 
 
 
 
 
 
 
 
 

JOIN US: RARE DISEASE DAY CHAT: 


Date / Time: February 22nd, 2016 @ 4:00pm EST
Twitter Chat: #RDDCHAT
Join Here: Rare Disease Day Chat

Share your story with others on this special occasion Twitter chat. Discuss real stories with others like yourself. Hear ideas from professionals alike.


FOR THE PATIENT:


T1: How have you been affected, or someone you love been affected by a Rare Disease?
T2: What has been your best source for support dealing with a Rare Disease?
T3: What has been your hardest pitfall to overcome with your Rare Disease?
T4: Who in your life has been the most inspirational person suffering from a Rare Disease?

FOR THE HEALTH PRACTITIONER:


T1b: How have you been affected as a professional by Rare Disease patient?
T2b: What resource(s) would you recommend for those with Rare Diseases?
T3b: What is the hardest pitfall you feel Rare Disease patients go through?
T4b: Please share a story of someone you know suffering with a Rare Disease?



LEARN ABOUT MY RARE DISEASE STORY HERE »
(Factor V Leiden | Livedoid Vasculopathy | Chronic Ulcers)

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