#RddChat - Rare Disease Day Chat

#RddChat - Rare Disease Day Chat:

Rare disease day comes once a year, but people with rare diseases live with their illnesses 24/7. Read stories from those people, resources to help, moments that are hard, and the faces of #RareDiseaseDay.

SEE THE RARE DISEASE DAY CHAT HERE »

Some Rare Disease Chat Members:

T1_PATIENT: How have YOU been affected, or someone you love been affected by a #RareDisease? #RDDCHAT #NIHChat pic.twitter.com/1UzVjyeqUn

— Martin R. Lemieux (@martin_lemieux) February 22, 2016

Over 3 million Canadians are affected by a rare disease ! #RareDiseaseDay Feb 29 https://t.co/L74OtHZn4A

— Christopher Ward (@chriscward) February 27, 2016

1 in 17 people will be affected by a rare disease at some point in their life – this equates to approximately 3.5 million people in the UK

— BIVDA (@BIVDA) February 23, 2016

Read @martin_lemieux's patient story and join a Rare Disease Chat - #rddchat Mon, Feb 22 - 4pmET #RareDiseaseDay https://t.co/DgZNBw4YVe

— Patient Chat (@patientchat) February 20, 2016

.@Vruno Best advice is to connect w/ disease advocacy group for support. Also, great information at GARD, https://t.co/HljP7KKPTR. #NIHChat

— NCATS (@ncats_nih_gov) February 22, 2016

There's so MUCH more information, patient stories and resources one can browse through concerning our Rare Disease Day Chat. Please don't forget to retweet information that interests you.

SEE THE RARE DISEASE DAY CHAT HERE »

Regards,
Martin R. Lemieux

@Martin_Lemieux - Tweet

Rare Disease Day Chat - #rddchat

 
 
 
 
 
 
 
 
 
 
 
 
 

JOIN US: RARE DISEASE DAY CHAT: 

Date / Time: February 22nd, 2016 @ 4:00pm EST
Twitter Chat: #RDDCHAT
Join Here: Rare Disease Day Chat

Share your story with others on this special occasion Twitter chat. Discuss real stories with others like yourself. Hear ideas from professionals alike.

FOR THE PATIENT:

T1: How have you been affected, or someone you love been affected by a Rare Disease?
T2: What has been your best source for support dealing with a Rare Disease?
T3: What has been your hardest pitfall to overcome with your Rare Disease?
T4: Who in your life has been the most inspirational person suffering from a Rare Disease?

FOR THE HEALTH PRACTITIONER:

T1b: How have you been affected as a professional by Rare Disease patient?
T2b: What resource(s) would you recommend for those with Rare Diseases?
T3b: What is the hardest pitfall you feel Rare Disease patients go through?
T4b: Please share a story of someone you know suffering with a Rare Disease?

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LEARN ABOUT MY RARE DISEASE STORY HERE »
(Factor V Leiden | Livedoid Vasculopathy | Chronic Ulcers)