Pain News Network - Living with Chronic Blood Clots

Living with Chronic Blood Clots

Martin Lemieux is from Ontario, Canada. Martin dedicates his time to helping patients who cannot advocate for themselves. He is currently writing two books on health care, patient care and how to be your own healthcare ambassador. Martin can be reached on Twitter at @Martin_Lemieux.

Posted: March 01, 2016
By Martin Lemieux, Guest Columnist

Article: PainNewsNetwork.org/stories/2016/2/29/my-life-with-blood-clots

#RareDiseaseDay - Patient Stories

#RareDiseaseDay - Patient Stories:

I've put together a small collection of Rare Disease stories on Storify. Please feel free to browse through real-life stories on people who suffer silently without a voice.

SEE THE ENTIRE STORY HERE » 

Some Example Stories:

Such a strong person! Thank you for Sharing your beautiful story Sarah. #RareDiseaseDay https://t.co/y8dgegysgQ

— Martin R. Lemieux (@martin_lemieux) February 29, 2016

This is wonderful :) - #RareDiseaseDay https://t.co/68deRdD4WP

— Martin R. Lemieux (@martin_lemieux) February 29, 2016

You're an inspiration to me and so many others Erin. #RareDiseaseDay https://t.co/gBkbgD6vVG

— Martin R. Lemieux (@martin_lemieux) February 29, 2016

Here's Armand's story: #rare #RareDiseaseDay #RareDisease https://t.co/IHi5OZtCi1

— Martin R. Lemieux (@martin_lemieux) February 29, 2016

My prayers go out to #RadleyStrong - #RareDiseaseDay #RareDisease https://t.co/I2o282Zzj2

— Martin R. Lemieux (@martin_lemieux) February 29, 2016

SEE THE ENTIRE STORY HERE » 

Regards,
Martin Lemieux
@Martin_Lemieux - Tweet

#RddChat - Rare Disease Day Chat

#RddChat - Rare Disease Day Chat:

Rare disease day comes once a year, but people with rare diseases live with their illnesses 24/7. Read stories from those people, resources to help, moments that are hard, and the faces of #RareDiseaseDay.

SEE THE RARE DISEASE DAY CHAT HERE »

Some Rare Disease Chat Members:

T1_PATIENT: How have YOU been affected, or someone you love been affected by a #RareDisease? #RDDCHAT #NIHChat pic.twitter.com/1UzVjyeqUn

— Martin R. Lemieux (@martin_lemieux) February 22, 2016

Over 3 million Canadians are affected by a rare disease ! #RareDiseaseDay Feb 29 https://t.co/L74OtHZn4A

— Christopher Ward (@chriscward) February 27, 2016

1 in 17 people will be affected by a rare disease at some point in their life – this equates to approximately 3.5 million people in the UK

— BIVDA (@BIVDA) February 23, 2016

Read @martin_lemieux's patient story and join a Rare Disease Chat - #rddchat Mon, Feb 22 - 4pmET #RareDiseaseDay https://t.co/DgZNBw4YVe

— Patient Chat (@patientchat) February 20, 2016

.@Vruno Best advice is to connect w/ disease advocacy group for support. Also, great information at GARD, https://t.co/HljP7KKPTR. #NIHChat

— NCATS (@ncats_nih_gov) February 22, 2016

There's so MUCH more information, patient stories and resources one can browse through concerning our Rare Disease Day Chat. Please don't forget to retweet information that interests you.

SEE THE RARE DISEASE DAY CHAT HERE »

Regards,
Martin R. Lemieux

@Martin_Lemieux - Tweet

Rare Disease Day Chat - #rddchat

 
 
 
 
 
 
 
 
 
 
 
 
 

JOIN US: RARE DISEASE DAY CHAT: 

Date / Time: February 22nd, 2016 @ 4:00pm EST
Twitter Chat: #RDDCHAT
Join Here: Rare Disease Day Chat

Share your story with others on this special occasion Twitter chat. Discuss real stories with others like yourself. Hear ideas from professionals alike.

FOR THE PATIENT:

T1: How have you been affected, or someone you love been affected by a Rare Disease?
T2: What has been your best source for support dealing with a Rare Disease?
T3: What has been your hardest pitfall to overcome with your Rare Disease?
T4: Who in your life has been the most inspirational person suffering from a Rare Disease?

FOR THE HEALTH PRACTITIONER:

T1b: How have you been affected as a professional by Rare Disease patient?
T2b: What resource(s) would you recommend for those with Rare Diseases?
T3b: What is the hardest pitfall you feel Rare Disease patients go through?
T4b: Please share a story of someone you know suffering with a Rare Disease?

---

LEARN ABOUT MY RARE DISEASE STORY HERE »
(Factor V Leiden | Livedoid Vasculopathy | Chronic Ulcers)

Share My Story - Patient Care Connect

Patient stories have a big impact online. I try to share my story so that other like-minded individuals, or people who go through similar health care woes, can connect together to help get the answers and motivators that they may need.

If you wish to share my story, please contact me via Twitter here. Send me a private message and I will be happy to work with you in order to provide you, or your organization with a uniquely written story.

My Story ~ Published Online:

A PATIENT'S PERSPECTIVE & LIFE SAVING STRATEGIES ON CLOT PREVENTION

Source:  Intake.me

---

LIVING WITH CHRONIC BLOOD CLOTS

Source:  PainNewsNetwork.org

---

FATHER TRYING TO ADVOCATE FOR PEOPLE SUFFERING WITH CHRONIC ILLNESSES. 

Source: RareDiseaseDay.org

---

 MARTIN'S STORY – YOU MUST BE YOUR OWN AMBASSADOR

 Source: VasculitisFoundation.org

---

More to come shortly!

Regards,
@Martin_Lemieux